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Portalhealthy.com is web directory including a lot of listings that relate health only such as health, beauty, fitness, health insurance, long term care, mental health, medication, pharmacy, nutrition, diseases and conditions and much more. |
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Genetic Disorders
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Fatty Oxidation Disorders
Informational site provides details on newborn screening, on numerous diseases, medical information and support resources such as a newsletter and email List.
http://www.fodsupport.org
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Costello Kids
Official site of the International Costello Syndrome Support Group. Includes medical information, photographs and videos, therapy ideas, news, and links.
http://www.costellokids.co.uk
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Chromosome 9P- Network
international not-for-profit organization dedicated to educating and bringing together families with children who have Alfi's syndrome.
http://www.9pminus.org
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Canadian Association of Genetic Counsellors
works to establish minimum standards of practice, to encourage professional growth, and to increase recognition of the genetic counselling profession in Canada.
http://www.cagc-accg.ca
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Alagille Syndrome Alliance
Worldwide support network for people who care about people with alagille syndrome.
http://www.alagille.org/
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